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Archive for the ‘DebRA’ Category

Published in Daily Record, 3 June 2010

HAPPY-GO-LUCKY toddler Isla Grist is always beaming despite the pain and suffering caused by her severe skin blistering condition.

The 23-month-old tot is one of the UK’s “butterfly children”, whose skin flakes off at the slightest touch.

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Three teams from RAF Kinloss will take on a grueling Round Scotland Challenge to raise awareness and money for the charity DebRA which helps those with Epidermolysis Bullosa (EB). 

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A huge thank you goes to each and every one of the 36 brave and now aching runners who took part in the 2010 Virgin London Marathon on Sunday 25 April and raised more than £80,000 for DebRA.

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DebRA Celebrity Makeover

The most successful DebRA charity shop in the UK is having a celebrity makeover as part of a nationwide project.  DebRA in Merrow is the flagship store for the charity which raises money for those with the condition Epidermolysis Bullosa, known as EB.

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Specialist DebRA Nurse, Jackie Denyer won the award for Services to the Management of Long Term Conditions.The most outstanding and influential nurses were recognised at the celebration on Thursday 18 February 2010 in The Great Hall, St Bart’s Hospital, London.

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The work of researchers, fund raisers and supporters of the charity DebRA will be celebrated at a reception hosted by First Minister Alex Salmond in Edinburgh Castle tonight (Tuesday 9th February).  It is hoped that the event will also boost awareness of the charity, which raises money to help children and adults with the genetic skin condition Epidermolysis Bullosa (EB).

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